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Project Information

WEB-BASED CARE PLANS FOR CHILDREN WITH MEDICAL COMPLEXITY

Agency:
AHRQ

HHS/Agency for Healthcare Research and Quality

Project Number:
1K08HS024299-01
Contact PI / Project Leader:
DESAI, ARTI D
Awardee Organization:
SEATTLE CHILDREN'S HOSPITAL

Description

Abstract Text:
 DESCRIPTION (provided by applicant): This proposal describes a five-year research training program that will allow Dr. Desai to achieve her long-term goal of becoming an independent physician-scientist dedicated to improving access to comprehensive, coordinated health services for vulnerable children. Dr. Desai's project goal is to improve the quality of care coordination for children with medical complexity (CMC). She will achieve this goal by examining the design and implementation requirements of web-based care plans to meet the care coordination needs of CMC families. She will use a participatory design approach by engaging stakeholders in an iterative design process to build a web-based care plan to help CMC families coordinate their child's care. This proposal builds upon her clinical training in pediatric hospital medicine and her previous quality improvement research related to pediatric hospital-to-home transitions. Dr. Desai's research will be supported by an outstanding group of mentors with expertise in quality improvement research, comparative effectiveness research, health informatics and user-centered design. Her mentors are dedicated to ensuring the success of this project and her career development as an independent clinical investigator. The first aim of this proposal involves a large observational study to examine factors that impact use of existing care plans among CMC families. Through development and administration of a survey, Dr. Desai will identify design and implementation features of existing care plans that are associated with extent of care plan use among CMC caregivers. Her second aim will consist of an iterative process of design workshops and rapid prototyping where caregivers, providers and health information technology experts will actively participate in the development of a new web-based care plan prototype. Workshop participants will also create an implementation strategy for the web-based care plan. The third aim will determine caregiver use and perceptions of care coordination quality of the web-based care plan prototype in comparison to a standard paper-based care plan. This proof-of-concept study will inform the development of a multicenter, pragmatic comparative effectiveness trial of web-based versus paper-based care plans for improving health outcomes in CMC populations. By accomplishing the aims in this proposal, Dr. Desai will address critical gaps in our understanding of how to leverage health information technology to meet the care coordination needs of CMC families. By engaging patients and families in her research, she will design interventions that are consistent with their values, preferences and goals. Ultimately, this proposal will allow Dr. Desai to build a larger research program to investigate system-oriented, patient-centered solutions to improve access to comprehensive, coordinated health services for vulnerable children.
Project Terms:
Address; base; career development; Caregivers; Caring; Child; Child Care; Clinical; Clinical Investigator; comparative effectiveness; design; Development; Educational workshop; effectiveness research; effectiveness trial; Ensure; Family; Goals; Health; health information technology; Health Services; Home environment; Improve Access; improved; iterative design; Medical; Medicine; meetings; Mentors; Observational Study; Online Systems; Outcome; Paper; Participant; patient oriented; Patients; Pediatric Hospitals; Perception; Physicians; Population; preference; Process; programs; prototype; Provider; Public Health Informatics; Quality of Care; Research; Research Training; Scientist; Solutions; success; Surveys; System; therapy design; Training; Training Programs; user centered design

Details

Contact PI / Project Leader Information:
Name:  DESAI, ARTI D
Other PI Information:
Not Applicable
Awardee Organization:
Name:  SEATTLE CHILDREN'S HOSPITAL
City:  SEATTLE    
Country:  UNITED STATES
Congressional District:
State Code:  WA
District:  07
Other Information:
Fiscal Year: 2015
Award Notice Date: 27-Aug-2015
DUNS Number: 048682157
Project Start Date: 01-Sep-2015
Budget Start Date: 01-Sep-2015
CFDA Code: 226
Project End Date: 31-Aug-2020
Budget End Date: 31-Aug-2016
Agency: ?

Agency: The entity responsible for the administering of a research grant, project, or contract. This may represent a federal department, agency, or sub-agency (institute or center). Details on agencies in Federal RePORTER can be found in the FAQ page.

HHS/Agency for Healthcare Research and Quality
Project Funding Information for 2015:
Year Agency

Agency: The entity responsible for the administering of a research grant, project, or contract. This may represent a federal department, agency, or sub-agency (institute or center). Details on agencies in Federal RePORTER can be found in the FAQ page.

FY Total Cost
2015 AHRQ

HHS/Agency for Healthcare Research and Quality

$148,122

Results

i

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